Collecting GP Data – General Practice Data for Planning and Research (GPDPR)

Colliery Court Medical Group is supporting vital health and care planning and research by sharing your data with NHS Digital. For more information about this see the GP Practice Privacy Notice for General Practice Data for Planning and Research.

Patient data is used every day to improve healthcare services through planning and research in England, helping to find better treatments and improve patient care.

It helps to decide what new health and care services are required in a local area, informs clinical guidance and policy, and supports researching and developing cures for serious illnesses, such as heart disease, diabetes, and cancer.

For example, GP data collected as part of the COVID response is being used by the University of Oxford RECOVERY trial, which is looking to find ways to improve the treatment for people with COVID-19.

Patient data is already being collected to improve health and care services. NHS Digital has collected patient data from general practices using a service called the General Practice Extraction Service (GPES). This system is over 10 years old and will be replaced by the GP Data for Planning and Research (GPDPR) from 1 July 2021.

You can opt out of sharing your data by applying a National Data Opt-Out (prevents NHS Digital from sharing your identifiable data for planning and research purposes) or a Type 1 Opt-Out (prevents your data from being shared with NHS Digital).

For the National Data Opt-Out you will need to register your preference via NHS Your Data Matters. 

For Type 1 Opt-Out you can complete the form and return it to the practice for action by the 23 June 2021.  You can still opt-out at any time after 23 June 2021 and it will prevent any more data being shared with NHS Digital.

NHS Digital have created this animation which explains what data is being collected and why https://www.youtube.com/watch?v=YLi9gh7RyLA

A delay to the implementation date for the General Practice Data for Planning and Research (GPDPR) programme has just been announced in parliament.

Discussions are ongoing, but the initial deadline of 23rd June 2021 no longer stands and has been replaced by 1st September 2021. https://www.bbc.co.uk/news/uk-politics-57400902